Ronda's Page
Profile Information
- About Me:
- I'm 37 and diagnosed with invasive ductal cancer, a 2.0 to 2.5cm tumor, ER/PR strongly positive, Her-2 neg, hopefully not in the nodes!
- Where do you live? (city, state, country)
- Los Angeles, CA, USA
- Relationship Status:
- In a Relationship
- What's your personal mission statement?
- Live, Keep my breast, and Be Happy
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yes, chemo sucks! i had the ac first, then the taxotere - no nausea with the taxotere, but it was hard in other ways - and the steroids made me crazy. surgery and recovery is nothing compared to chemo. i am glad you are happy with dr. silverstein - dr. funk was my second surgeon, and she was a huge relief after the first one, who i am grateful to for removing all the cancer from my breast - i did, however, chose the bilateral mastectomy and went to dr. funk purely for that purpose, i never really asked her opinion!
i did not take any vitamins during chemo - it was just too much to stomach. i have been on this regimen for 2 months now and i am truly feeling better, more energy, etc.
i will post the list of what i take tomorrow - need to finish up homework and get everyone here to bed. . .
hang in there - you are almost half way through.
marla
Welcome! I read your comment how you came across CSC and then CSL - too weird how these things get put in our path. Hope you are doing well - talk soon! Be sure to join the Crazy Sexy Breast Cancer group!
Hugs, TIna
i actually ended up at the cedars breast clinic - my surgeon was kristi funk. my cancer has not come back, but i ended up going the complete opposite route than you. i first had a lumpectomy with a dr. at st. john's, just a week after my diagnosis. i had positive lymph nodes, so i also had an axillary node dissection at the same time. when they did the lumpectomy they found 3 tumors, all relatively small, so my cancer was multi-focal. i was also her2neu+ (er+/pr+ also), so the cancer was considered aggressive. i then started chemo a month later for 6 months. after the insane hysteria of my original diagnosis calmed down and i was home a lot because of the chemo, i started doing lots of research and decided that my best defense against a recurrence was to have a mastectomy. after i completed chemo i had my ovaries removed, then i needed surgery to repair my tear ducts (they became scarred shut - a side effect of taxotere), then i had a bilateral mastectomy (wanted a matched set), 2 implanted catheter surgeries, surgery to remove tissue expanders and replace them with silicone implants, nipple reconstruction, and little scare in march this year with lymph nodes on the opposite side that turned out to be benign! it's been a wild ride, but i am at peace with my choices.
you are really young, i think if i had been younger and single my reaction may have been different. as it is i would cut off an arm to be here for my kids.
as of now, i feel pretty good - it's taken a while to get my energy back. i just recently met with an integrative oncologist at ucla - she was great - and i've started a whole new vitamin/supplement regime. i also take arimidex. today i found out the my vitamin d level is low! i went to my dr. last week and requested that it be checked, no doctor had suggested it ever!!
i don't know anything about the B-40 trial. i checked out the attachments you put on the breast cancer group discussion - i had a couple of those drugs. . . starting chemo is scary, but know that first one is the hardest, then you know what to expect. it is different for everyone and a lot of people breeze through chemo pretty well. please feel free to ask any questions.
i wish you all the best,
marla
Lana
I was in the same boat as you a year ago. Waiting for surgery and lymph node status was torture for me.
I will keep you in my thoughts and prayers. If you have any questions or simply need to talk to someone who has 'been there, done that' feel free to contact me.
Many Blessings & Healing,
Moon Masque Mystic
I have DCIS, so it had not spread. I caught it really early because of my baseline mammogram. So much for "baseline". I was diagnosed in March, had surgery (lumpectomy) in June and just started radiation this past Monday. I will do radiation for 7 weeks and then take tamoxifen for 5 years. Hopefully, that will do it. It is all so crazy and overwhelming isn't it??? Can you even believe that this is your life? Where are you with your treatment plans? Any decisions made yet? Anyway, I know you will get so much advice and EVERYONE has an opinion. But please let me know if you need anything. I have been reading non-stop and I feel like I could go nuts from all the information. It is so much to deal with.
Alright, my niece is having a sleepover at my house and I have to get her to bed. I have her eating popcorn and watching "Dora" in the next room. It is past her bedtime. Isn't that what aunt's are for?
welcome to csl and thank you for joining the breast cancer group. i'm also in l.a. - who have you chosen for an oncologist? please let me know if there is anything i can do for you, or questions i can answer - i've been there!
best,
marla
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