KirstenNotKristen's Friends

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Started this discussion. Last reply by Debbie Apr 16.

About Me:: I am a 34-year-old (32 at diagnosis) female with primary refractory Hodgkin's. I was diagnosed in April of 2006 after an x-ray revealed a 10cm mass in my mediastinum. Subsequently, I underwent four months of chemotherapy (MOPP-hybrid and ABVD), an autologous stem cell transplant and 20 rounds of radiation (mediastinal). That failed to knock things into remission so I had 10 more months of chemo (Vinblastine, then Gemcitabine) and 5 more rounds of radiation (hip). I have had a mixed-response to treatment so I am now looking into clinical trials in the U.S.

In my "normal" life, I am a writer, animal lover, pseudo runner and paperphile (don't ask...) In general, an aficionado of little, but connoisseur of much...

What's your personal mission statement?: In search of voodoo and a magic chicken...

At 2:44pm on April 19, 2008, Lexy said…: Hello Kirsten,
I am currently undergoing treatment for non-hodgkins lymphoma (mediastinal large b-cell). i live in Montreal and I heard you are moving out here. Let me know if you need anyone to lend an ear locally!

At 12:35pm on April 11, 2008, Anna said…: Thanks Kirsten! I'm glad you mentioned things like nausea and being tired, cause I'm still dealing with stuff like that. I was worried that I shouldn't be feeling all this nausea at this point in time. As far as being tired, yeah, I have that to. Unfortunately, I've been using it as an excuse to not go for walks. Right now, that's the only exercise I get. But there are days that its still so cold here and today its raining.
Hugs & prayers,
Anna

At 1:04pm on April 7, 2008, Henrike said…: Hi Kirsten,
thank you!

I know a lot of people who participate in the Team in training- it looks like a lot of fun! My fundraising is going pretty slow, but that's nothing new. It's just tough raising money for a cancer foundation (and an American at that) here in Europe and you get rejected a lot. But, since I feel it's an important thing to do and a great foundation to support, I just keep going and do my best. Plus, I get to meet a lot of great people through my mentor volunteering, which is a plus.

My friend in Utah tries to get me into the Livestrong summit in Ohio. It's not so much about getting accepted, but finding the resources to pay for a flight (it's in the summer vacations, so prizes are way up) and a room to stay. Let's see how that goes- would love to go- always a great couple of days for cancer research and advocacy.

I have to say, I'm a bit jealous that you got to do the Vancouver marathon- that'S just my favorite city in the world- okay, I assume you don't get to concentrate that much on the city when you're in the middle of a marathon ;-)

Good job right back at you!
Hugs, Henrike.

At 12:59pm on April 7, 2008, Alecia said…: I would love to join Cleanse when it gets started .. I have started with wheatgrass shots and yes want to invest in a juicer .. is any one kind/brand better than another .. can I get away with a cheapie one ? I think the biggest hurdle is getting friends to underrstand why you won't go have a drink and a burger with them = )

At 12:16pm on April 7, 2008, Alecia said…: Hi I'm new on this site .. just read your profile, you are definitely a warrior .. keep fighting !! I do not have cancer, but my mother and aunt passed away from cancer and my sister has been fighting it fro 6 years .. I am scared to death of getting it .. yet continue to smoke socially like a friggin idiot, that's why i'm on here .. to get healthy and to get inspired by all of you who are battling this ugly monster .. so thanks !!!!

At 11:24am on April 2, 2008, Anna said…: Hi Kirsten!
I'm home now, and I'm on day 35 and I'm doing ok. No complaints really, just that I really miss having hair. My kids think it's hilarious that my head is so shiny, until I tell them that if they like I can pick them up from school with no hat on my shiny, bald head.
How are things with you? Are you doing ok?
Hugs,
Anna

At 2:20pm on March 26, 2008, Anna said…: Hi Kirsten,
Just popping in to say hi and see how your day is going...
Hugs...
Anna

At 7:08pm on March 23, 2008, Anna said…: Ok, let me try this again, Kirsten, I don't know if you celebrate or not, but I hope you had a great Easter!
\Hugs!

At 10:31pm on March 19, 2008, Carrie Belair said…: fancy walking together to find that majic chicken!!! I LOVE a good hunt.

At 8:04pm on March 19, 2008, Anna said…: I give you alot of credit Kristen! Keep fighting the good fight. I do wonder, if it's not to personal a question, why they decided to do the sct so close to your first round of treatments... and why didn't it work... Keep kicken' ass!

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