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My Crazy Sexy Life

Gee, Brain. What are we going to do tonight? The same thing we do every night, Pinky. Try to take over the world!

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Discussions (182)  Photos (22)  Videos (5) 

About Baldylocks

Baldylocks
About Me:
I had AML (Acute Mylogeneous Leukemia). I was diagnosed at 33. I've had a stem cell transplant and my brother was my donor. I'm now 35.

I'm an artist and am gaining the strength to become an advocate. I have a blog and plan to educate about young people and cancer through my artwork.

Oh, and I tend to like to have a good laugh on my blog. www.baldylocks.com
Relationship Status:
Single
Favorite Quote:
Fall seven times, stand up eight -Japanese proverb
Favorite Book:
The Time Traveller's Wife
Your Website or Blog:
baldylocks.com/
What's your personal mission statement?
To turn back into me.

Baldylocks's Groovy Groups

Quotation Station
(25 members)
Created by bueller
Crazy Sexy Publishing
(36 members)
Created by Martha
We made Cancer our BITCH!
(86 members)
Created by Big Ryan
Crazy Sexy Hot Mommas
(95 members)
Created by Debbie
Vagina
(34 members)
Created by Baldylocks

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Baldylocks Blog

A OK Stamp of Approval


So I had my oncologist appointment yesterday and she says everything looks good! My vagina has turned out okay after the surgery and I have no active signs of graft/vs/host. My blood work looks normal! For the first time in 3 years!

I wasn't even sure I'd hear that said to me again. My brothers stem cells are settling in nicely and starting to get along with me.

I didn't get the big lowering of my medications I was hoping for, which is a bit of a disappointment. She doesn't want to "rock the boat". That's fine except for the steroids make me sick. I'm on such a low dose that most medical professionals don't think there would be side effects but I have them anyway. When they did my transplant they said I was the ward's "Star" patient because I was young, fit and otherwise healthy, which was a wonderful thing to hear! Shortly after that, though, I turned into the problem patient because I had adverse reactions to almost everything they gave me. They were constantly juggling drugs. It was awful.

Anyway, she did say I could stop taking one drug, the steroid. Yay! Last year when I was taken off the steroids for 2 months I started bouncing back quickly. I expect some good results in the weeks to come.

So my medication schedule is going to stay mostly the same. The one difference is that the first row of my pill box (early morning) will now be empty. The rest is still full. I also think that I've found a mistake in my drugs. Mistakes happen often so you have to be very vigilant and aware of what you're taking. I have so many doctors that it makes it hard to keep track of who's doing what. Scary.

I also am well enough now to start getting all of my immunizations done. Apparently that will take a couple of years to get them all. I'm ready to roll!


And my oncologist was very curious about what happened with my vagina and cervix. I'm the human anomaly again. She has never seen a case where the vagina was attacked by the graft/vs/host while the rest of me seemed okay. Very unusual apparently. It's the story of my life. She said she has also has never seen a case where the cervix actually closed over and blocked. At least that means I'm special.

During the surgery they released 250-500 ml of fluid from my uterus which is the same amount as my chocolate milk. I was like the human utero, water balloon.

So I think I will name myself Ms.Spectacularly Unusually Special, for the day.

The Life Lounge

And out comes my hair...with a hair-shaving poll

Added a post Jul 17

Now you know the power and beauty of the bald. Congratulations! Enjoy your bald head while you can because next thing you know, you'll have a full head of hair again! Good luck with all of your tr... Read More »

 


Visit my blog at Baldylocks.com

Check me out on the Stupid Cancer Show radio/podcast!
The play button makes me look like I'm gagged but trust me, I'm not.

Baldylocks's Friends

Comment Wall (169 comments)

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At 3:02pm on July 18th, 2008, Lori said…
It's because I asked what caused it, so he gave me the "well it can be nothing, or this or this, etc." line. And closed it with, "but there's no need to worry about it right now". Hehe.
At 7:28pm on July 13th, 2008, Lori said…
Yo!

So I got my new slip of a metric fark-ton of labs to get done. Since it's Gretta's time of the month I have to wait until she's done raging since they're doing urinalysis' and she may skew the results in the event of bad aim.

So apparently with the symptoms and a few highs and lows on the CBC, I'm getting checked for a few things. There's apparently "only" (hah) 9 types of leukemia that could be a possibility, also vasculitis (still) in addition to some other less scary things..or it could be nothing.

How's that for random?

It will be a couple weeks before I get to get all of the stuff done so I'm just gonna chill and ride it out.

How everything going with you?
At 11:11pm on July 11th, 2008, Betsy said…
Hi Baldylocks! Thanks for bringing a bunch of joy to my Friday night! Love your video.
How are you doing?
Betsy
At 7:45pm on July 6th, 2008, Beth Ashton said…
Hey Baldylocks! I love your picture with the blue wig. What attitude! I would love to check out your videos, but alas, I have dial-up......
What is "The Time Traveller's Wife" about?
-Beth
At 12:48pm on July 6th, 2008, Austin said…
I just love that quote! :) That's awesome.

How are you doing Baldybabe?
At 3:38pm on July 3rd, 2008, Vivian said…
Baldylocks, you are a riot!!! Just saw the picture you left for Musique117!! Thanks for the laugh! Hope you are having a wonderful day! Vivian
At 9:13am on July 3rd, 2008, Linda said…
Sault Ste Marie, is located to the north of Michigan, in Canada, have some relatives there. So are you then near the pacific ocean?
At 10:02pm on June 30th, 2008, Linda said…
www.city.sault-ste-marie.on.ca

Are you in Canada?
Good to here you soon is doing well, enjoying his summer
At 10:37am on June 30th, 2008, Linda said…
How is you son doing? How are you doing too?
Are you near Sault Ste Marie?
At 4:11pm on June 25th, 2008, Lori said…
Thanks for the flurry of comments!

Well, it has a name but now it needs a reason. Vasculitis.

Bring on the tests, boooo!

I totally got approved for insurance, it's pretty crappy insurance and I had to bend the truth a few times. But hey, better than none.
 
 

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