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welovedonny

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About Me:
i'm here because my mom has endometrial cancer stage IIIc and looking for anything that may help...
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Single
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helping my mom overcome cancer

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edit 4/27/08

First, thank you for your responses on my question on chemo. To be honest, it was good to hear from both sides, and yes, my mom did decide on doing the chemo. Here's how it played out: She was still hesitant on doing chemo and had a plan to ask her oncologist if she can wait a little bit more. Can she wait till it grows a little more? Maybe it is done growing. Maybe on the next pet/ct scan it won't show growth. That was her plan, wait until the last minute until she MUST or HAD to do chemo. Of course, doctors are good at convincing. When she saw the doc, he asked back, when is too late? When the tumor is 1cm bigger? 2cm bigger? Also, you want to have chemo now because as the cancer grows it'll be more resistant to the chemo. Right there and then, my mom knew she had to do it. Also, she DID she a natural doctor and on some weird twist of fate, the next day I read a report on natural doctors/loopholes and they even talked about one of the natural doctors she was going to see but was too busy. It reported that the problem with natural doctors is that some things that can be cure of antibiotics, they will instead suggest this or that. Even how some patients died with natural doctors, yet they never lose their license because well, the standards aren't strict like MD's. However I wouldn't say it was all bad, we came to them like a nutritionalist, what to eat/drink because western doctors nurses just tell me to "go to mcdonalds to get your mom lunch for chemo". So extreme on BOTH sides is not our route, maybe for some, but not my mom.

The question I have NOW is that how did people react to chemo and what helps?? My mom had her first chemo last wed, felt fine wed night, thur and fri, and never had to take nausea pills because she never felt she had to. Then Sat morning at 2am she went to the bathroom, she had a little constipation and when she did go, it wasn't easy. She then walked back to her bed and fainted and hit the ground. Her eyes were zoned out and she came to a couple seconds later. She then threw up lots of water and went back to sleep 3 hours later. It was now 6am and she couldn't go to the bathroom herself and my dad helped her and on the toilet she fainted again and felt dizzy again. More vomiting and chest pain and we called 911 and took her to the ER. They couldn't find her veins for 40 min and she was kicking and yelling for water cause she felt dehydrated/chest pains. Finally they had a special team find her veins and put her to an IV and in 1 minute, she felt back to normal. They made her stay longer because her white blood cells were low and they did find an infection which they gave her antibiotics. She stayed for 5 days, 4 in Intensive care and 1 in just the normal rooms. She is home now (4 days after release) and feels fine again.

Anyone have similar stories or suggestions while on chemo? I think she fainted because 1. her drugs/steroids/nuseau injection wore off and hit all at once. 2. maybe dehydrated? and add constipation and going number 2, you lose oxygen to your brain (this happend to my grandpa 2 months earlier after he went number 2!!)

But yea, any suggestion while on chemo, food, dehydration, taking ensure/boost, whatever please let me know!! Thank you so much!!

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edit 4/14/08

if you have any feedback....

update on my mom:
physically good but she jumps back and forth on starting chemo. she missed starting it last week , freaked out so we went to cali visit family. it was needed. we also saw natural doctor to see what he recommends to eat for the long run, more like a dietician and then for peace of mind to say we went to both western and natural dr. we tried to cover all the bases. we have an oncologist that graduated from john hopskins med school and second opinion from another oncologist who is director of womans cancer department. we saw a natural doctor from the tree of life who showed her what to eat + supplements/vitamins that may help.
i thought she was ready now then she changed her mind last night about chemo again. we see the dr. tomorrow
hopefully he can talk to her. she had some her lymphnodes removed the ones removed came back w/ cancer on last PET/CT scan. she thinks as long as its small its okay
not thinking it could spread more. shes basically scared of side effects of chemo and we tell her to do chemo but its up to her but still.........she hears horror stories of chemo
rather than good ones, and good ones she dismmisses

sure its her life, but what if shes making decisions off horror stories. she hasn't even went through the chemo yet!
patrick swayze, kylie minogue, people we know all did chemo. i read more people doing it then not...we just met a friend of my moms at walmart and HE had chemo and fine
but he had heart probs before and after that but my mom thinks its cause of the chemo!

and then you hear horror stories of those that DID do chemo
and messed them up more. so what do you do???
then theres my dad who had a coworker who's wife had chemo who passed away. he prob tells him everyday not to get it and prob convinced him to think that there is cures for cancer but the government makes money off cancer, but you can't think that way. then you're just playing the blame game. you just make your immune and body and mind as good as possible but if its late its late......even though people DIE of chemo, its not really the chemo in the first place right? it was the cancer...and they just happen to be on chemo. she thinks dying of no chemo, there will be no pain.

but what if she is right, that its her life and she wants high quality of life but then again, she hasn't even tried the chemo yet?????

so now i don't know anymore

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edit 3/10/08
just set up phone consultation w/ tree of life for tomorrow.
anyone have 'green' juicing recipes? i been doing carrots mostly for my mom and anything 'green' but i don't know if i'm missing anything....
i'm going to wait on what the doc from tree of life says about cesium and poly mva, but even if they say no, i still almost want to get it even if ONE person says it helps. i know that it sounds like desperation but i really want to cover ALL fields! however, i know each month will get expensive so it won't last forever, but maybe that ONE month is what might help..i don't know.......
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edit 3/10/08:
this website and kris has been THE SINGLE MOST helpful site and book that i have read so far. i can not wait to watch the documentary with my mom.


I'm here for my mom. she was diagnosed 3 weeks ago w/ endometrial cancer stage IIIc and prob going to do radiation and a little chemo. we see the dr again this thurs w/ second opinon from another doc this wed. she is doing the budwig diet w/ flaxseed/cottage cheese, taking calcium supplements, and essiac tea. am i missing anything?? have anyone heard of taking cesium, or cesium choloride? coral calcium? rubidium/potassium? how about poly mva?

the juicing veggies i got down ( i think)
mostly carrots w/ everything else right?
or should i do more GREENS then carrots????

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welovedonny

edit 4/27/08

edit 4/27/08 First, thank you for your responses on my question on chemo. To be honest, it was good to hear from both sides, and yes, my mom did decide on doing the chemo. Here's how it played out: She was still hesitant on doing chemo and had a plan to ask her oncologist if she can wait a little bit more. Can she wait till it grows a little more? Maybe it is done growing. Maybe on the next pet/ct scan it won't show growth. That was her plan, wait until the last minute until she MUST or HAD to… Continue

Posted on April 28, 2008 at 1:46am —

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At 7:45pm on July 28, 2008, Stephanie said…
I actually finished up Chemo in May, was granted remission status on June 11, and had one follow up last week. Life is getting back to normal, though not quite the normal it was. I pray that you and your mom are well, and that this goes smoothly for her.
At 12:21pm on May 4, 2008, Stephanie said…
I didn't know it was an infection at first. I thought I was just having the typical indegestion that accompanies chemo. The doctor figured it out after I was laying moaning on the table. I've learned to tell him every little tiny thing that I feel, even if I think it isn't significant. After IV antibiotics for two days I felt 100% better. I think mine was because I was juicing abunch of things (like bokchoy from the asian market) which is a no-no during nutrepenic time. I'm not supposed to have raw vegies or fruits when nutrepenic. Oops. Anyway, I'm fine now. Hopefully just finished my last round. Feel free to ask any fquestions!!
At 9:42am on May 2, 2008, Joan Acello said…
a port is the way to go. a friend who went through it convinced me. it makes it so much simpler and painless.
At 9:07pm on April 29, 2008, Joan Acello said…
Welovedonny, am I your mother? The exact same thing happened to me. I started Wednesday, the steroids wore off by Friday at 3 and I was a mess until today. Water helps--always have a water bottle nearby. Water helps with nausea. And I had a port put in because I have no veins and it was the best thing I could've done. All the best to your Mom, I literally feel her pain. But this too shall pass as they all tell me!
At 10:35am on April 29, 2008, Callie said…
oH THE CHEMO.. I was dog sick.. I have found that there is a vasel reaction with pain that can cause a temporary faint of lack of conciousness when constipated because duncan has had that happend. It is scarey. Add some stool softener preferably natural so it doesn't interfer like aloe vera into her diet and that will stop that.. but still call the dr.

all chemo is differnt. honey I had never been so sick in my life.. I threw up for months on end and my heart raced and I was depressed and lived on pop siscles but still was dehydrated from the vomiting. I would call the dr. asap and talk it all over with him.. if you cannot get him and get a nurse.. go in.. make sure he knows there are things to lessen the symptoms.. write every question down and get him to answer them all. It is hard to think of them when you are on the spot. I know the chemo is hard but it is well worth it i the end. it does get easier and they can change the formula so it is not so mean... just be sure and share it all with your onc. hugs and good luck.. give mom a hug and let her know we get it and take care of yourself too. Caregivers need rest and support too. dont feel funny about calling in reserves.. no one knows what to do but they do want to help. so let them.. then later when they are sick pay it forward. hugs. callie
At 3:10pm on April 28, 2008, Baldylocks said…
I had a Hickman line which is like a port but it goes in through the chest and has three lumens. I needed powerful chemo which would have destroyed my veins without the Hickman. I think some people call it a power port.

There is a chance of infection but it's not that big of a deal. They just pull it out and give you a new one. I had mine for 9 months without any problems but I knew other people who had it removed and replaced.
At 8:44am on April 28, 2008, Pam said…
Hi, well I always took the nausea meds they prescribed me even if I felt fine. I took Emend the day of chemo and the day after and then was given Kytril to take three days after. As I said, I took the Kytril even if I felt fine and never had a problem. I did feel woozy at times but never threw up, not once. Thank goodness!! Also, I ate broth and light soups the days after chemo and drank lots of water (and still do). I drink at least (if not more) 64 oz. of water a day. My only really bad times were two days after when I had severe muscle and bone aches. I had been warned of these side effects before I took the chemo. I was given Andrimycin and Cytoxin in combination and these drugs really knocked me for a loop, but I never threw up. Tell your Mom to hang in there and I wish her the best.

Regards,
Pam
At 3:53am on April 28, 2008, Baldylocks said…
I had a port, so they just taught me how to do it myself. I should probably have had help as my hands were very shaky.
At 3:47am on April 28, 2008, Mikey said…
sounds like it's been quite a week! i hope things are going better for your mom at the moment. i second what baldylocks said, the first round is the hardest. also, the side effects of chemo are at their peak 7-10 days after you receive it. so it's no wonder that she felt fine a couple days after the chemo, but then began to feel crappy after that. the faintness is probably due to her low blood counts, which is to be expected while going through chemo. i fainted once in the elevator on my way up to see my oncologist- it was because my red and white blood cells were so low, i couldn't physically stand anymore. i was also dehydrated.

don't even get me started on constipation!!! it seems like everything causes constipation, so it's hard to avoid it. what seemed to help me was staying hydrated and taking stool softeners most days. i didn't like taking laxatives because they cramped my stomach too much, but the stool softeners seemed a little easier on my system. all in all, what your mom is going through seems pretty "normal" while undergoing chemo. i know she must be feeling crappy at the moment, but as the saying goes, you feel worse before you start to feel better. :) this will pass, and then she can continue the road to recovery. hope this helped!
At 12:54am on April 28, 2008, Baldylocks said…
As a side note, I found the first chemo rounds the hardest. After my first week, it was much easier.
 
 

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