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I'd love to do coffee...! Here's my email too...tocarol@earthlink.net We should invite Amy too...she and I met and she gave me one of her beautiful Soul Bags - it is truly incredible. I'm going to copy her on this too.
I love hearing from Omaha. Hope you are well today. I loooove your favorite quote, I'm going to think of that when I need it. It's great. I have a foundation I started. It called SOUL. I give out SOUL bags for women fighting breast cancer. They have some great things in them to help with chemo. A water bottle, a shawl, a book...a few other things and the bag is awesome and you can load it up with things you need for your chemo treatment. My email is Amymc1@cox.net. Email me and I will drop one off for you.
Take Care...Hope to hear from you soon.
Amy
It's been 10-11 days since numero uno. How's it going? Been thinking about you everyday hoping you're doing okay. I've not been on again for a while.. Had the final implant removed after developing an angry inflamed area. Decided to take it out and be done. So, now I'm healing and happy they are both out...flat chested and all. Not a big deal. The right one didn't hold due to the radiated skin, and this on the left developing a contracture that looked like an alien was being born. When it got red, I decided it had to go. No More. I still think about you everyday. Hope things are improving each moment. Write when you feel up to it. When is number 2?
Belinda
See how you feel since your 1st tx - like Belinda says - the first one knocked me for a loop with fatigue, bone pain and blahs...then I had various other kinds of symptoms with the other 3 such as neuropathy, low white counts, hand/foot syndrome...
Gentle hugs,
Carol
No adriamycin? That's good. I had AC the first go around. This time, I did Taxotere alone. I had a bit of neuropathy in my feet and with the first tx I had the blahs severly around the 3rd day...just couldn't even lift my head. No nausea, but I did take all the medicine. Have you had prednisone? Also, I took (geeze, I'm drawing a total blank here).......anti nausea medicine that was new and cost me $300.00 for 3 day dosing. I didn't complain, it seemed to work. Then with the chemo, I had benadryl (50mg ! I swear I thought I was going to die when they told me....as an RN I seldomed pushed 50 mg of benadryl...I was scared to death but I did fine...just slept), then I had Pepcid IV, then some additional Prednisone IV, then some anzemet which was later changed to something else (zofran maybe???can't remember and can't find my log, imagine that). He gave me a Rx for phenergan but I never needed it. Water, water, water did help. When I couldn't eat anything (yukky metallic taste in my mouth) I sipped on coke. I know you're not supposed to but it was the only thing that felt good in my mouth. Lemon drops helped also. Sucked on them all day. I did develop mouth sores the 5th tx. Ok I ifound my log...emend was the anti nausea drug. I had chemo on Thursdays and a neulasta shot on Friday to keep my WBC's up. I had a terrible time with wbc's the first time...neuts went down to 0. The neulasta (just a heads up if you get it) gave me a strange burning sensation that was sporadic and didn't last long and some bone pain. I did take a melatonin SL at night because the steroids kept me wired. It didn't always help and I became very familiar with Infomercials. I took (didnt tell my MD) L Glutamine hoping to help with the neuropathy ( I read since it's an amino acid, the body uses it to counteract any SE's of the chemo). Had a HA though a lot. I got alot of zits from the prednisone. I think looking back, my biggest problem was just severe fatigue. The bone pain, the HA's, the loss of appetite was periodic and tolerable.
Well, dear, thanks for the kind words. You're too kind. I'm just thinking so about you and everyone who has to go through all of this. It's silly but true...it does make you stop and smell the roses. Things don't nearly bother me like they used to. Oh well has become a favorite comment of mine. When people say, aren't you upset? I just laugh and say, not really. I'm not bothered by petty things anymore. It helps that I'm not working on the floor anymore. But all in all, I'm truly blessed to have soooo much in my life. Financially things are tough right now but when they start calling, I pull out my cancer card and tell them (if they get ugly) to get lost...I dont have time for that in my life. Life is short. Ive been given time that after given percentages of life expectancies, that time however long is gonna be the best. No one can take that away from us after what we've been through. I've had it easy compared to many. Count my blessings.
Enough rambling. My visit was to my Mom's. She's getting up there and I spend as much time with her as I can. She lives in Indiana and I cherish my time there. Another reality check!!!
Sounds like your hubby is right there, going along with you on this great "life" ride. Sounds like a winner. I think it was harder on mine and my kids than me. They had to look at me... !!!
Hang in there sweet thing and know you are in my prayers. Let me know how you are doing when you feel up to it.
I've thought about you allllll day.
I've been away for 3 weeks and have missed so much. I think of you often. How are you? So you start chemo tomorrow? Hang tough my lady. It's a piece of cake...you know how they say It's all in your attitude??? Anyway, go in with a smile, leave with a smile. They had a big banner in my chemo room that said Chemo is My Friend. Hmmm. What is your chemo regimine? Is someone going with you? Drink plenty of water (take it with you). Will they give you benadryl? (If they do, make sure they push it slowly) Ask for a pillow and blanket. Get comfy. I'll be thinking of you all day. Hopefully, you're still being the princess you deserve to be and letting all around you help out.
I'm so out of the loop right now. I feel like I've missed so much. please let me know how you are doing.
Belinda
Sorry I'm so far behind on responding. I did not get a port - I'm surprised they're making you get one for only 4 tx unless they were concerned about your veins. I don't know but I didn't want a port for some reason. All in all though - TC is supposedly one of the more tolerable cocktails. I wish you luck and will be interested to hear what your se's are like. Feel free to ask me any questions.
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