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Mrs. Nordy's discussions

The Brain Tumor Warrior Princess Reaches a Huge Milestone

Replied Nov 15

Gamma Knife, Cyber Knife....Anybody had anyone of these treatments?
1 Reply

Started this discussion. Last reply by Rebecca Nov 3.

11/05/08 Bren is Home!

Replied Nov 3

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Mrs. Nordy's Page

Profile Information

About Me:: I have a little brain tumor that they removed and are treating for "residual cancer".

Birthday? (not required, but you might get presents!): May 18 1971

Age? (How rude! not required...): 37

Where do you live? (city, state, country): Costa Mesa, CA

Your Zip Code?: 92626

Relationship Status:: Married

Favorite Quote:: "when you know better, you do better" Maya Angelou

Favorite Book:: Right now it's Crazy Sexy Cancer

What's your personal mission statement?: To keep improving and to be a better person.

Comment Wall (9 comments)

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At 11:00am on November 26, 2008, laetitia said…: Hello,
wondering how you are doing and how the specialist in san diego was. I hope you found a caring woman you are comfortable with.
Peace,
Laetitia

At 4:15am on October 25, 2008, Bren said…: Really long time, missing you andpraying all is well...Bren let me know when you are back...xxoo

you have a candle with your name on it on my real altar..virtual one is always burning on-line now...come see. muahs

At 12:19am on October 22, 2008, Mrs. Nordy said…: Thank you for support! Tomorrow I will be traveling down the the Kaiser Brain Tumor specialist in San Diego to review my treatment, thusfar. I am a little excited to see a woman for a change, and I have a postitive energy about it! This adventure has certainly shifted my vibe and priorities and I expect more good things to come!

At 4:07pm on October 18, 2008, Bren said…

At 8:20pm on October 7, 2008, laetitia said…: I am sorry you had such a bad experience with him and I don't know what to say about that!

He works with the UCLA team I believe because the kaiser N.O oncology department has a special relationship with them (maybe because he trained there?)

I can see how he could come off as arrogant or aloof, but I just don't kow.

Everyone's experience with any specific professional, especially when it comes to someone dealing with our BRAIN is different.

The couple I know who also sees doctor Green has the main practitioner at kaiser sunset that I used to have and are very happy with her. Interestingly I felt she let me down during my post operation struggle (long story you can read it on the brain tumor group posts) and I switched, I now have a main practitioner in Pasadena I am happy with...Same doctor different experiences.

I also filed a complaint with kaiser for different reasons and I need to follow up with it.

glad you are feeling good.

At 6:50pm on October 7, 2008, laetitia said…: Well hello, yes I do have doctor Green!

As far as I know he is the only neuro oncologist at kaiser Sunset but there are other kaisers.

I completely agree with you about Emily, I think she is arrogant and unprofessional.

However I have to say that I am very happy with doctor Green.
He works closely with doctor cloughessy (probably wrong spelling) well respected N.O at UCLA with whom he trained.

The few times I called him directly he called me back right away and when I had a problem in France this summer he e.ailed me back right away.

I feel that he is honest with me about my condition and my current treatment, ( I am on avastin every other week for a pylocitic astrocytoma after a year of temodar and 6 weeks before that of radiation.)

He acknowledges that we are on uncharted territory with my type of tumor and the treatment plan and doesn't pretend to know what he doesn't know.

My first impression of him was of a very caring person however I was not happy dealing with Emily at all and not so happy when he had me first on radiation then on chemo and avastin at the first sign of growth of my supposedly next best thing to to benign tumor... We did get second and third opinions however that concurred with his recommendations but did not even try to get reimbursed by Kaiser (good luck with that)
I also know someone who has a GBM and just had a recurrence, he is being wonderful, working with him and coordinating care plan with the team from UCLA.

I hope that helps.
I am curious to know what type of tumor you had and what your treatment is and would be happy to share anything else that might help you.
Peace,
Laetitia

At 2:22pm on October 7, 2008, Bonphire said…: Hi Mrs. Nordy! I have to tell you - the whole losing hair thing was more about the anticipation and the fear about it. When it actually happened it was not so bad! I would be so happy to talk to you more about it if you want to. It is a fascinating process and I find that if I keep that as my focus -- it helps keep me in a positive place.

Sending hugs,
Bonphire

At 12:29pm on October 7, 2008, Bren said…: Welcome to the royal realm of all things healing and sexy. Just stopped by to say hello and offer a hand of friendship. Come by my elvish healing home and visit me...I'm here if you need to talk or need help getting acquainted. Everyone needs a new friend on this road less traveled. Blessed be, Bren

At 10:18am on October 7, 2008, Omkari said…: Welcome to CSL:) As you begin exploring the site, remember the search tool in the upper right corner in case you are looking for specific info. Also, check out our personal messaging feature (envelope icon) in the upper left corner, in case you want to email someone through the CSL forum. Let us know if you have any questions! It’s also helpful to read the town rules, which are listed in the Life Lounge.

Peace!
The CSL Team