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Just wondering how you are doing and if you have any new info on avastin, I am trying to do as much research as possible about the drug since my NO wants me on it indefinitely and I am not sure wether I need to be or not and also worried about possible side effects.
Thanks,
Laetiita
Good luck with your MRI. I hope everything turns out okay!
Have fun at Hipprocates. I hope your tummy feels better soon. I know how that is, believe me. All of these drugs should come with ulcer proofing..heh heh.
Feel well,
Christine
Just wanted to drop you a line to see how you're doing. I didn't realize you live in Brookline. I live near Hartford in Connecticut, not too far.
You'll never guess but I'm back on Keppra now. My doctor tried me on Dilantin and I had an allergic reaction so I asked to be put back on Keppra. At least I know I'm not allergic to it! :) So far so good. Seems to be working this time around. Very weird. Anyway, hope you are doing well, off playing tennis or just being your active self!
Good to have you here!
Henrike.
Yes there are a couple of people in my brain support group who have had GBM and are fine now so you keep on going!
My edema did not show up on an MRI but the oncologist in France was certain that it was that because of the symptoms and the anti inflamatory meds did the trick thank god.
I have also exercised without consequences many times the day after the injection and even once after!!! Now though I too just"chill"!
I lived briefly in brooklyne many years ago. You are lucky to be able to go sailing.
Peace,
Peace,
Laetitia
I am a brain tumor survivor too and I am on avastin only now. I have been on it for 15 months, first along with temodar for a year.
I was curious to know on what dosage you were on and how often. Also did you get an idea of how long you may have to stay on it?
I am on 300mg every other week.
MRI every other month as my tumor is inoperable and still on top of my brain stem but I hope dead!
My N.O said I could go once every three weeks (I asked) as it is supposed to stay in your system for 21 days but that if it were him he would stay on it once every two weeks...
I don't know what to do since this is uncharted territory.
I have had no side effects from it except being a little tired the evening after I get the injection.
I also have to be careful not to do any strenuous exercise anymore as I did have an edema around the tumor this summer which thankfully went away with anti inflammatory meds.
Congratulations on getting a better quality of life, I am in the same place after two long years and appreciating every second of it!
Laetitia
I am here if you need any assitance.. Yes.
The sugar thing can be challenging. One day at a time is the KEY.. Baby steps.
Marina :)
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