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- About Me:
- Hi, I came to this site by way of the Crazy, Sexy book that was given to me. I totally identified with Kris Carr's way of looking at life with canser. I realize how important it is to reach out to others in our community and embrace them, share, support and love....oh yeah...juice and eat your veggies! I am doing great (clinically and otherwise) after being diagnosed with an inoperable brain tumor in Feb/06. I am changing my lifestyle daily to become healthier and ultimately overcome "the little things" that sometime pop up.
- Birthday? (not required, but you might get presents!)
- September 20th
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- 51
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- Atlanta, Georgia USA
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- 30030
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- In a Relationship
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- The power that made the body, heals the body....
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- Crazy Sexy Cancer Tips (and Survivor)
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- http://drmaryk.blogspot.com
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- I want to walk in God's light, love and be loved..... a day at a time.
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Ok, I'm a little freaked now. Just got back from my visit with my GP about my liver and he wants to do an ultrasound tomorrow morning. He wanted to do it today but they didn't have any openings. I've been feeling a little bit of discomfort in my right upper abdomen lately, and when he was feeling around the area of my liver, it was tender. Do they only do the ultrasound if they suspect something is really wrong? He is doing a complete metabolic panel too to test function, but he did seem a little concerned. Yuck, I don't like this Mar. :(
I would love to hear any of K.J.'s suggestions that she wants to share, that would be wonderful and so thoughtful..thank you! So far, so good with the new med. It does seem to be helping. Still getting some break through headaches, but they are a lot less severe and I'm on a low dose yet. I get to increase tomorrow, so I'm crossing my fingers that maybe a mid size dose will be enough, so I don't have to get into all of the side effects.
On a total side note, have you ever seen The Namesake? The movie. I read the book awhile ago and it is great, but they really did a beautiful job with the movie.
xoxo
C
Thanks so much for thinking of me and meditating on me, gosh! That really touched my heart..I'll leave it at that.
I hope things are mending with me too (and you too of course!). Over the past couple of months I've worked really hard to get rid of things that might be hurting my body like all otc medications and that bad seizure med. I've also been juicing and exercising more, dry brushing, and have gotten rid of all toxic beauty and body care products. Part of me thinks maybe some of the headaches are coming from dumping so many toxins all at once. But I know that I do have a genetic predisposition to getting them since I've had them since I was a kid, and my dad, mom, aunt, and brother have the same problem. My aunt even has a brain tumor and hydrocephalus as well, so neuro issues do seem to run in my family I guess.
My neuro did mention that he is only thinking of keeping me on this preventative med until I can be free of headaches for 3-4 months. At that point he said I might be able to come off of it to see if the headaches will stop. He seems to think if my brain can get used to being headache free for awhile the nerves might get used to being calm. I'm not sure I entirely believe that, but it would be so amazing if it actually works. I can hardly imagine what it would be like to not have headaches!
Virtual hugs are great. That's what I need. :)
I'm home from work today. Probably a good thing to give my body some extra rest anyway. I tried to go in but we are having work done on our building and there is dust everywhere, so I decided I didn't need to be breathing that in. I don't think my boss was too happy because I went home sick yesterday and I've been out four days in the past 3 weeks, but I don't know what else to do. I certainly can't work when I'm in that much pain. I have to take care of myself first.
Today is so much better pain wise. I still have a slight headache, but I can live with that, yay! I took my first dose of the new med last night. It knocked me out but I woke up at 2:30 a.m. feeling refreshed. It was the weirdest thing. I'm keeping my fingers crossed that maybe my body will respond well to this rx. He put me on a very low dose of an anti-depressant (Amitriptyline, I think) that is supposed to work well for migraine prevention. I'm just on 10mg right now and then I can increase up to 30mg if I don't get relief.
I don't seem to have any other symptoms other than an increase in really bad headaches and problems sleeping because of that. My stomach is a bit of a mess, very acidic feeling, but that is a side effect of just about everything I am on. I've been really careful with my diet as always to make sure I'm eating foods that are low in acid and taking pro-biotics and aloe. The aloe seems to help ease the stomach issues. My last liver function test was just slightly above normal, and the new seizure med I'm on doesn't metabolize through the liver, so they aren't concerned about anything being wrong there. I think I'm going to make an appt. with my primary care doc though to have him run another test just to be safe.
I also have another MRI in a few weeks, so I'll find out then it anything more is going on.
Thanks so much for keeping me company through this, it's really helped. I feel bad that it's all been about me. How are you doing?
will keep this short as today is a really bad day and I'm in a lot of pain. went to see my doc. he put me on a new preventative medication for the migraines. i start off on a low dose and then increase over the next three weeks until I feel improvement. he thinks i'm in a headache cycle that is just continuing from day to day because i haven't been able to break it yet. otc and abortive meds aren't working anymore. i really really hope this new stuff starts to work fairly quickly. I feel like i'm getting to the end of my rope as to how much i can take. i think i'm pretty strong, but honestly i'm barely holding it together on a day to day basis right now.
Lori
Gosh, it's been a long time! Thanks for checking in. I'm just dealing with more stupid headache issues again. That's been my life lately. Got better temporarily when my liver function improved, now they are worse again. C'est la vie. I'm going to see my doc Wed so hopefully he can do something! How about you? I see a new doggie pic, very cute! How's life been treating you?
So, tell me about the great dogs I am seeing pictures of on your page! We have a two year old shih tzu/poodle mix, and a two and a half year old toy poodle. They are the best dogs! The most important lessons I have learned from them? Live life in the moment. Give life all you have. Enjoy the breeze and running through open fields as fast as you can. Nap in the warmth of the sun whenever possible.
Talk to you soon!
Lori
I DID GET THE GIG!!!!!!!! sorry to shout :) I'm very very happy...you should have heard the yelling here the other night when I got the email :)
Did you get the Counseling info that I sent? I sent it to Kimball's email...it could get lost if that address gets lots of mail...
How have you been?
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