My Crazy Sexy Life

Diana's Page

Profile Information

About Me:
Greetings fellow warriors. I am married. 38 yrs (yes,to the same man) got married at 16 , two kids. Can honestly say without them and my girlfriends, amle also, life would have had been very difficult during the many surgeries, chemos, and radiation. I have been in this battle for 20 years, with three reoccurences. The last was 2 years ago and the most aggresive treatment was necessary. I HAD, (I try to always refer to this in the past tense ) Melanoma and if any of you know it just keeps coming back. It is very difficult living with a Cancer that just doesn't give the fuck up. But I am strong and know life can be just as beautiful after Cancer as before in fact we warriors see it even more meaningful, more beautiful, I can go on and on but I am sure you know. I have been left with Lymphadema both legs, stomach and everywhere else below my belly button if you know what I mean. I haven't read anyone else addressing that. It is very common with Cancer surgeries so I am hoping some others have addressed it. Well, I could go on and on with all the experiences I have gone threw with this battle, but you all know the story. It is an honor to be in the company of so many cool, strong people. May your spirit continue to shine bright. Diana
Where do you live? (city, state, country)
Lakeview, New York US
Relationship Status:
Married
Favorite Quote:
My Heart Is Set On Living
Favorite Book:
The Secret, A New Earth, The Power of Now
What's your personal mission statement?
Stay Alive

Diana's Photos

Loading…

Comment Wall (62 comments)

You need to be a member of My Crazy Sexy Life to add comments!

Join this network

At 12:35pm on October 27, 2008, NancyGM said…
Diana, I am soooooo very happy for you on your clear scans. I have a busy morning, but will right more later...hope your husband is having a smooth recovery. Don't you just hate surgery! Big hug, Nancy
At 11:08pm on October 25, 2008, Randi said…
Diana
I think you are the first person on this site that i can relate to. I have been battling for over 3 years and it sounds like we have exactly the same deal. The thought of going through anymore surgeries is something im not sure how im going to deal with. I am still working in a large hotel here but know its about to change. How do you do it? You sound like you have been fighting so hard it must be so mentally and of course physically brutal! Im not even sure i can do this again. Any words of wisdom? Isnt if funny how they dont even tell you when they take out your lymph nodes you may have lymphadema. I had no idea what it was-I was like WHAT IS THIS? The doctors dont seem to want to tell you in fear you might not want the surgery. But I guess what is the alternative. By the way I love New York it my absolute favorite place. Hope you are feeling stronger today
randi
At 11:56pm on October 13, 2008, Randi said…
Diana
20 years is encouraging. I had lymphadema in my thigh after a major lymph node removal in my groin. Its no picnic. This cancer doesnt give up and i think thats why people dont talk about it as much. I hope i am strong enough to endure the next round of treatments after being clear for the last 3 years randi
At 6:55pm on October 7, 2008, Cindy said…
Diana: I'm sorry to hear that your lympedema is such a bear! Are you near a good lymphedema treatment center? There's a really good PT treatment center here in Seattle at the Seattle Cancer Care Alliance -- the PT's at SCCA are led by a woman named Andrea, and she is a lympedema expert extraordinaire. I don't know whether they do consultations over the phone, but I'd be happy to ask, if you'd like -- just let me know. Sending hugs and some Seattle sunshine (yes, it's actually sunny with blue skies today) your way. Best, Cindy
At 3:08pm on September 23, 2008, Maureen McCarthy said…
i love GH!!! oh really! did you kill him yet??heehee!! she would love to come out! i just wish i could do more for her. i'm trying atleast to have just mom and daughter time once a week.
luv you!
At 1:39pm on September 23, 2008, Maureen McCarthy said…
hi aunt diana! the family is good! mom has her good days and bad. sometimes i think its worse now than earlier. i keep telling her to pick up the phone and call you. she needs to get out before the snow starts flying! tell everybody hi!! and hopefully brewski will start behaving! he is so sweet though!
love you guys, moe!
At 11:01am on September 23, 2008, NancyGM said…
Diana, I'd love to hear your Temodar story. I can't write much right now, but would really like to share info and experiences with this crazy, powerful drug. I used to feel like "this doesn't really count as doing chemo cause I still have my hair, etc." but, boy, after 6 or 7 rounds (when most stop), I had low counts, some anemia and was weak and really tired. Feel like it did wierd things to my head to! Anyway, I'll write more later. 8 years NED is very encouraging! I'm sorry lympadema has been so awful for you. I havent\'t had a problem as necks don't usually have the problem limbs have. Peace and tons of support, Nancy
At 10:54am on September 22, 2008, NancyGM said…
Diana, You can ask me anything you'd like. God, 21 years! Melanoma just doesn't give the fuck up, does it? First of all, I am sorry to hear you are end stage now. If you would like to talk about any and all of it, I would be honored to be a support. You know, basically, I really don't know if any of the "positive" health things I try to do affect the progression of melanoma, they just help me so much, mentally. It seems to do what it wants to, huh?
I was diagnosed stage IIa/b 5 years ago and went to stage IV January 2007 at which time I had major surgery, a thoracotomy, just to biopsy my lung met which was wrapped around my pulmonary artery and couldn't be removed. I had a complete response to Temodar and have been off treatment for 9 months. I had a PET in December that showed the lung met wasn't detectable, but a node in neck was still lighting up. This January I had 21 nodes removed and none (even one from PET) were malignant. Had a clean PET on April fool's day ( ! ) and then my onc has made me wait 6 months til next scan. At our stage, that seems like a long time so I'm nervous about my 9/29 PET and my 10/2 brain MRI.
I am a single mom with 16 and 18 yr old girls who do not have their father in their lives and don't have other suitable relatives to be family. As a mom, all I really worry about is them being ok, you know?
I am very upfront about stuff, too, contact me anytime. Do you ever go on MPIP.org? Good support, info, yet, sometimes overwhelming.
At 2:44pm on September 21, 2008, NancyGM said…
Melanoma sucks. I am stage IV, but hopefully still NED. I think you are right about how us warriors see life as even more meaningful and beautiful...thanks for your strength and inspiration!
At 10:55am on August 29, 2008, Sandra said…
Thanks for your wishes for the day Diana. Today, my dearest love and I are going to take the afternoon and disappear on an adventure. We live at the southern tip of Vancouver Island so we are going north up the east coast of the island to visit a vineyard where we shall share some appies and perhaps a small glass of wine (I feel like indulging today!) then off to visit a couple of communities stopping for supper at a lovely country inn on the way back home. Yippee!
May you have a peaceful day!

View All Comments

 
 

Bulletin Board

check out The Crazy Sexy Tech Lounge for your Q&A about using site features!

Latest Happenings

Kristen's Raw Kristen's Raw replied to the discussion CALLING ALL CHOCOLATE LOVERS! 3 minutes ago
Lais Lais added 4 photos. View Photos 3 minutes ago
DSCN1833 DSCN1926 DSCN1930 Ilha Grande - Rio de Janeiro, Brasil
Debbie W Debbie W commented on the blog post Karmic Implications of The Red Road ~ Restoring the Hoop of Inner Harmony of Mind, Body & Spirit 5 minutes ago
BrainCandyPapa BrainCandyPapa's profile changed 5 minutes ago
Hopalong Hopalong left a comment for Kendra Jacklyn 5 minutes ago
Austin Austin left a comment for Tina! 6 minutes ago
Tina! Tina! replied to the discussion does anyone know about the link between estrogen production and wheatgrass? 7 minutes ago
Austin Austin left a comment for Kendra Jacklyn 8 minutes ago
e.sayward e.sayward replied to the discussion Cure through mind's power. 10 minutes ago
Alisa Diez Alisa Diez left a comment for Jen Puglise 10 minutes ago
Austin Austin commented on the blog post Karmic Implications of The Red Road ~ Restoring the Hoop of Inner Harmony of Mind, Body & Spirit 13 minutes ago
Austin Austin left a comment for Linda Ann 14 minutes ago

Kris Carr's Crazy Sexy BLOG

Electric Altar

Post a prayer or wish for yourself or anyone who needs a special boost from our collective energy.
step inside the Electric Altar

Check This Out!

Click here to learn more.
******************************

We're working hard to connect you with the best health conscious products. Get The Good Stuff
 

© 2008   Created by Crazy Sexy Life

Badges  |  Report an Issue  |  Privacy  |  Terms of Service