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About Me:: I'm from Kansas, and I loved this documentary. I was diagnosed with a grade 3 malignant astrocytoma brain tumor in December, 2007, so I'm really just starting on the journey to healing.

Birthday? (not required, but you might get presents!): November 20, 1981

Age? (How rude! not required...): 26

Where do you live? (city, state, country): Lawrence, KS, USA

Your Zip Code?: 66047

Relationship Status:: Single

Favorite Quote:: tiens ta tête toute élevée, ce sont souvent nous mêmes qui compliquent la vie (Hold your head high, for often it is us, ourselves, who complicate life)- My friend, Jelena Kleissler

What's your personal mission statement?: currently working on living in the moment: BE

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LAUGHTER IS THE BEST MEDICINE! HUMOR GROUP

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Crazy Sexy TV Junkies!

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Can I continue to call myself Catholic?

Replied Oct 25

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I am officially going out to California for one week in Early August to work directly with Dr. Robert Young. I'm very excited about it, and about the idea of making myself healthy by making my body healthy, rather than putting toxic drugs into my body. I'm also officially stopping chemotherapy this weekend, by skipping that dose-forever. I am not getting a lot of family and friend support on this, as they are deathly afraid that I'm killing myself, but the people in my life who do understand see… Continue

Posted on July 2, 2008 at 2:47pm —

My Doctor

Last night I was surprised to see that my neurosurgeon, Dr. Keith Black, made an appearance on Larry King Live in a discussion about cell phones and their dangers. I was very happy that he didn't hide behind the (flawed) studies that "prove" cell phones are not a danger.

Posted on May 28, 2008 at 4:29pm —

Today I'm going to Los Angeles for a follow-up appointment with my doctor. Well, the appointment is …

Today I'm going to Los Angeles for a follow-up appointment with my doctor. Well, the appointment is tomorrow, but I'm leaving today, because i live in Kansas. I've been feeling relatively good since I finished radiation on the 27th of February, so I'm hopeful about my next MRI, but there's always this lingering fear of what if the tumor has spread in my brain, or hasn't shrunk? Even when i hear good news, I can't help but wonder about the possibility of bad things happening. Last time I was in L… Continue

Posted on March 9, 2008 at 8:54am — 5 Comments

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Comment Wall (22 comments)

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At 12:00pm on October 7, 2008, Susan and Stacey said…: Anne! - so glad to connect with you! We are often in Lawrence as we used to live there and now our brother lives there. What a great place! Your profile is uh so touching! Come be with us at our event on November 12- called Glowing on Raw which will be held in Olathe at Cedar Creek Country Club- there will be room for 50 women and we will have about 8 or so women giving testimonies as to the changes they have experienced thru the coaching packages that we offer- but mainly we would love to have you there b/c a good friend of ours who decided to take our 3 month course has also stopped chemo so we are hoping that would bring you huge support and encouragement! Our best to you..Love Susan and Stacey / More info soon to come out about the event so keep in touch via our site www.therawbodytwins.com or email us at coaching@therawbodytwins.com

At 12:21pm on July 31, 2008, Maria said…: Hi, Anne! You post was extremely intertesting and informative. I am so glad you enlightened us all. I am praying for you.

At 10:06am on July 31, 2008, Lindsay said…: Thanks... This is all very new to me. They removed my tumor and "think" they got it all. But still wanted to do radiation. Hope everything works out for you! let me know if you need anything also!

At 3:42pm on July 22, 2008, Mary said…: Hi Anne,
Thanks for writing back and thanks for letting me know about the book: I will definitely read it.
You are an incredibly courageous person indeed! When the medical establishment, one's friends and family, and everybody around tells you that the traditional approach is the only way, it is so scary to go other way around, no matter how right that other approach feels and how much you believe in it. Chemo is a very powerful tool and while it works for some folks, it may not be an option for others for various reasons. It's a very individual and private decision, because of all the side effects involved and other reasons. Yes, it can be tough on one's family and friends when someone chooses another path of healing.
I will be thinking of you during your trip to Calif and I am sending lots of healing and positive energy your way!
...as they said in that movie, "may the force be with you!" - in this instance: "may the HEALING force be with you now and always!!!"
Mary

At 12:39pm on July 21, 2008, Mary said…: Hi Anne,
Just want to say "hi" and let you know that I feel inspired by your blog. Please keep us posted on your journey and your progress in California. I am sending a lot of positive and healing energy your way!
Mary

At 9:02pm on May 28, 2008, laetitia said…: No the avastin does not make me nautious, tired but just for that day.

I mistook zofran for an antidepressant!!!
I take it only before and during temodar, now that makes me nautious and tired for the last 3 days at least (5 days on, 23 days off).

You are lucky to go to cedars Sinai, I have heard nothing but greatness about Dr. Black. Do you like your N.O there?
I belong to Kaiser, so I go to the one on Sunset, my N.O is ok, he follows the protocols of Doctor Cloughessy at UCLA and trained with him, so I feel that I am getting the best possible care, given how little is known; unfortunately I have to deal with his assistant a lot and I rather dislike her!

How many months of temodar do they want you to do?
I hear now the recommendation is to be on it for 2 years...Unless I see encouraging results on my next MRI I don't think I want to do another year but Avastin I could put up with.

I also see a great chinese doctor in Santa monica who prescribes herbs for me that I brew into tea 6 times a week.

And yes I had radiation also prior to the chemo, my
tumor is inoperable (midbrain top of the brain stem).
You can read my story if you feel like it on the brain tumor group.
Nice chatting with you.
By the way I share your fears but try to enjoy the moment and not let them rule me!

At 6:12pm on May 28, 2008, laetitia said…: Hey Anne,
I am glad you are doing well, I am doing well also, I have one more round of temodar to go through (one year treatment) and I also do avastin every other week.
My tumor has shrunk a little but is mostly stable and I still have double vision.
I don't take zofran but effexor and I am glad I have been able to lower the dosage slowly but surely.
Did you do chemo and are only on avastin now? (my neuro oncologist said that could be an option for me)
Have you had any side effects from avastin?
It's so good to share info with someone going through a similar journey!

At 2:15pm on May 28, 2008, laetitia said…: Hello Anne,
Just wondering how you were doing.
I noticed your quote is in french, are you french?(I am).
Peace,
Laetitia

At 12:08pm on April 20, 2008, laetitia said…: Hi anne,
My name is Laetitia, I too have a brain tumor and am doing temodar right now.
I like this quote and I have to remind myself of it as I also am afraid of tumor not shrinking or worst getting bigger (I have a pylocitic astrocytoma on top of my brain stem, inoperable) :

FEAR = false evidence appearing real

If you feel like it you can read mine and heather's stories on the brain tumor group, as well as sharing yours (it took me a while but I found it therapeutic)
Take good care,
Laetitia

At 11:05pm on April 19, 2008, Lori said…: Hi Anne. My name is Lori and I was diagnosed with a grade II Oligodendroglioma Christmas Day, 2006. Surgery two days later. Watch and wait since then, while going "raw" and juicing. I just invited you to be added to my friends list. It's great to get to know other brain cancer survivors!