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i was just introduced to you thru the mama posse. my son was dx at age 7 with pelvic rhabdomyosarcoma and is now 18 y/o and 10 years cancer free! my heart goes out to you and i am here for you. i am happy to listen, to share, and to pray! you are not alone! this is a challenging journey and i am here to walk and/or crawl beside you. whatever you need~
with peace, love and grace,
kelly
thank you very much for your answer. I just saw your profile, you are one strong lady to deal with three little kids + this challenge (to put it very mildly)
I hope you have a great support system and that this forum helps.
I just have a quick question (as I soon will be faced with the decision to stay on chemo or not for another 6 months)
Did the temodar shrink your daughter's tumors, stabilize them, or both? Do you feel that going 18 months as opposed to a year helped?
Thank you much,
Laetitia
My scans have all been clear thus far ;)
I really have a hard time with my platelets though, they have been as low as 33,000. Luckily on this dose (200 mg) they have remained above 100,000 but just barely.
All in all, I cant complain :) Atleast I am alive!
-H
Did she take Temodar?
I also have brain cancer (anaplastic astrocytoma- Grade III) I am so sorry to hear that your son/daughter has brain cancer.
I look forward to getting to know you better!