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Stephanie
32, Female
sterling
United States - Share
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Stephanie's Groovy Groups
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Crazy Sexy Gardening!
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Crazy Sexy DC Area
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Leukemia-Ites Unite!
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Profile Information
- About Me:
- 31. Wife, mother, daughter, and on.... New to the list: cancer dancer. I began the dance in January 08 when diagnosed with AML. I don't call it a battle, it is not an opponent. It was a sign of an unhealthy body. I can work with that.
JUNE 11, I am now in REMISSION!!!
I DO want to enjoy heaven, just not yet. I have three children to raise, and one husband to love.
- Birthday? (not required, but you might get presents!)
- June 19th
- Age? (How rude! not required...)
- 32
- Where do you live? (city, state, country)
- Sterling, VA, US
- Your Zip Code?
- 20165
- Relationship Status:
- Married
- Favorite Quote:
- "I can do all things through Christ Jesus, who strengthens me"
- Favorite Book:
- "A Severe Mercy"
- Your Website or Blog:
- http://caringbridge.com/visit/stephaniehavener
- What's your personal mission statement?
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I came home early today because I just wasn't feeling well. Nothing specific except some lingering GI tact issues that popped up this weekend. I was just so tired that I couldn't form complete sentences. Kraig came and picked me up and brought me home. I slept all afternoon and now I'm feeling a bit better. Perhaps it was just some fatigue rearing it's ugly head. IIt could also be a cold or something setting in (not having an immune system always makes those types of contagens a little scary) which definately caused some heightened stress. I'm going to try going back tomorrow because I have to be gone next Tuesday afternoon for my monthly trip to St. Louis for the oncologist.
I found out last week that one of my biggest behavior concerns is moving to another school this week and that will definately change the climate of our classroom. I think that the move will just kill him with all of the upheaval but it will only help the classroom environment.
We do progess reports on a "tri-mester" basis so we are gearing up for our first grade cards and parent teacher conferences. I'm off to try to catch up on some paperwork before I head for a hot bath and an early bed time.
Hope everything is well in Virginia. Happy Halloween!
Have you had any more unusual symptoms or are things running smoothly? I hope and pray that all is well. Try to take it easy this week, ha!
Yeah, not sure what's up with the cells. Apparently the test that showed them is a new test, so they're not sure if it's reliable, I think? Yeah, the next step for her, if necessary, is the BMT, but hopefully it's not necessary- for you, or for her. I can't remember if I told you, but I was supposed to do this, but I don't match- so maybe she would have to have the auto thing as well. I too am praying that you don't relapse. God can truly do more than we can ask or imagine.
My sisters name is Victoria, we call her Vic.
So is Virginia inland? My city, Tauranga, is on the east coast of New Zealand, it's so beautiful. I live about 10 minutes by car from the beach. Delete Comment
I just had my first post one year monthly check-up and everything went well so they have lowered my 'roids another 2.5mg so I'm only on 12.5mg now. The onc can't wait until the next appt. so that he can get me down to 10mg. That's a managable number in his mind. He could handle me being on that dose or less for a longer period of time. Of course, the goal is to be off of it ASAP but we are moving in the right direction. I'm tired a lot but now seem to be able to manage the job and some house work in the evenings so that's an improvement. I'm off my acid-reflux meds which I've been on for over 2 years so that's another plus.
When I went for my appt. this past week I had my first of several phlebotomies (remove a pint of blood) to lower my iron levels. They pulled the blood out of my port using a 600ml syringe and it was a totally icky feeling. My BP fell to 100/60 and they had to keep me for a long time. They finally let me go when I reached 116/64. I think they just wanted to go home. Now I won't be so eager for the next one when I go in next month. This coming Thursday I go to my local treatment center to get my 6 hr. infusion of IVIG to help keep my immune system closer to a normal range during the virus season. It's a drag to have to make sub plans again (although it's getting quicker) but it's rather nice to know that I don't have a 5 day work week.
I'll grab a chai tea latte and some sugar laden pastry as a treat before I head in and won't feel more than a little bit guilty!
I'm glad to hear that your scare came out on the good side. Do they have any ideas as to why you might have experienced those symptoms? I still freak out over bruises that show up on my legs and arms. I cried the first day that I realized that I DIDN'T walk straight from the shower to my bedside lamp to inspect my legs for petichia spots. All these crazy irrational emotions that go along with every type of cancer.
I was at a football game tonight w/ approx. 70,000 other devoted fans and a guy sneezed this huge wet sneeze two rows in front of me and the wind blew the saliva spray back and in our direction. My husband stepped in front of me. Seems both of our defenses are still pretty high-strung and strong. Talk about taking one for the team. Let me know if you find out any definative answers. I know you were looking into possible thyroid issues and they could explain your symptoms as well.
Stay strong sister! Education needs ya!
What are your husband and children's names?
She is doing really well, she is approaching it all with a positive attitude which makes such a difference.
She is catching up with friends, making the most of family time and working as much as she can.
The results from her appointment were that she has minor traces of the leukemia cells but apparently the doctors aren't worried about this, they are just going to keep monitoring her and at this stage she is not going back into treatment.
As you will know, one of the options for further treatment is the bone marrow transplant. I was the potential donor for this, except the test results have shown that I don't match. That was sad to hear but it is fantastic that she doesnt actually need to have more treatment at the moment- so she may never need a donor anyway. We'll take it as it comes.
I know what you mean about growing closer to God during it. I think there is no other choice. I can only imagine what it must be like for you and my sister to have gone through this experience and then fit back into your 'normal' life. It's strange but in a way I wish I could understand better, even though the only way I could do that would be to go through it myself, which probably wouldnt be such a good idea! But I believe that God has deepened my understanding of and sympathy/empathy for people with cancer through this, because I have asked him to. Yes- it will be so amazing to meet you... maybe even before we are before the King!!!
So...that was the deep and meaningful... here come the get to know you questions!
I am keeping you in my thoughts and prayers.
My sister is ok thanks, healthy and happy. She is back in Tauranga, our home city, where I and my parents live. She has finished her 6 rounds of chemo and has had her final biopsy, we are still waiting for the results of that. She has appointment at the doctor today so maybe that is related but I'm not sure.
xx
Kia Ora (hello) from New Zealand!
Thinking of you and praying for you!
Just checking- are you in remission now?
Leah xx
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