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About Me:: I'm a SAHM to 4. I'm in the process of cleaning up my diet and becoming a "healing junkie" as Kris calls it. I caught the docu. Crazy, Sexy, Cancer at a time that I really needed some inspiration and light through the tunnel. At that time my sister was recovering from surgery for cervical cancer. Prior to that she had a melanoma surgically removed. My Dad had just had a massive heart attack and had a quadruple bypass surgery. He made it through and is now doing great. Finally my mom at that point was just diagnosed with stage 2b ductal breast cancer that had spread to lymph nodes. Currently she just had surgery after 6 months of horrible chemo and will now get radiation for 5 weeks once she is healed from surgery.

I was horrified, scared, worried and felt like I got dumped on. Then here comes Kris like a breath of fresh air and literally teaches me how to live again. I have started my journey towards healthy eating and living life with purpose. I bought her book on cancer tips and inhaled it in a day. It nourished my soul and led me here.

I love this site as there is so much love, support, and knowledge. It's comforting to see that there is life after a cancer diagnosis and ya'll are living proof of that. How inspiring each of you are.

Blessings,
Helen

Relationship Status:: Married

Favorite Quote:: "slow and steady wins the race"

Favorite Book:: Happy Housewives by Darla Shine

What's your personal mission statement?: Live life with purpose and forthought while enjoying the ride!

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At 8:31am on August 8, 2008, Susan said…: Hi Helen,

Thanks for all your sweet words! I hope you have great success with your diet. If it worked in the past, then it can again.

I was in my twenties when I had the endo. and had no children at that time. I think the surgery preserved my ability to conceive.

I met a woman who had surgery twice w/two different docs. The first time she still had pain afterwards but was told the endo was all gone. Well, it wasn't & it was around her appendix-which burst because of it! Later she went to the same doc as I did & was finally pain-free. I saw her a year or so after her surgery when she was pregnant.

It was scary to have the surgery because I was afraid if it didn't work...what next?! But I had been in such pain for so long. I used to plan my driving route so I knew I could pull over if I had to, didn't eat during the day because I wouldn't be able to get thru work/school if I did. Ate at night & then was on the couch in pain.

It was a very difficult experience, and I really feel for anyone dealing with chronic pain. So I really hope you find something that works & you get relief.

Take care!

At 1:10pm on August 7, 2008, Susan said…: I had laproscopic surgery for endometriosis after spending about 5 years in chronic pain. It was on my ovaries, intestines were looped up and attached to my uterus...all over my abdominal cavity. I never had any other treatment since. That surgery was 16 years ago & I have been pain-free all this time!

It is a shame that so many women suffer so long with this illness. It may seem unbelievable that you can be free of it while you are suffering. But if you are, keep trying to get help! Life without pain is a goal worth fighting for!

Best wishes,
Susan

It took several docotrs before I found the one who "fixed" it.

At 9:15am on August 7, 2008, Goony said…: Oh, thanks. I wasn't sure I was explaining it good. I haven't thought about adenomyosis in a long time. What a terrible disease. I hope that you and your husband are able to have another child. At the time of my hsyt. I was pretty much done. I had a 2 and 5 year old, and the 2 year old was a handful. But here I am now, only 34 years old. Still some more childbearing years ahead of me. I'm not really feeling like oh god I want a baby so bad, but I do wonder if I would have tried one more time for a girl if I still had my uterus.

Give this diet a fighting chance. I would love to see it work for you!

Goony

At 8:39pm on August 6, 2008, Goony said…: Hi, I'm back. My stomach has been so upset the last 3 days. My doctor thinks it's cuz of the cyst? whateer.

Well endometriosis is basically the cells that line your uterus, growing outside of the uterus. These implants can be all over the abdomen, on your ovaries, ligaments, cul-de-sac, bowel, bladder. Each month those tiny implants build up just like the lining of your uterus and shed/bleed like a period inside your belly, only it has no where to go, so it irritates everything and causes scar tissue. Adenomyosis, is in the muscle of the uterus. It basically makes it impossible for your uterus to shed properly each month which is why your periods are horribe. The best analagy I've heard is it's like this. Picture your uterus trying to expell the blood during your period. Now picture you have a mouth full of marbles and try to spit out saliva. You just can't spit it out right? That's what it's like for your uterus. So as far as I know there is no cure for adenomyosis.

The polyps are just a hormonal thing that pop up, and seems to also go hand in hand with the other diseases. It's all a hormonal thing. Too much estrogen? Not enough progesterone? Something is off. We are exposed to fake estrogen everyday. It's all around us. You would have to live in a bubble to stay clear of it.

Google natural progesterone cream for adenomyosis. I think I do recall that being something that might help. If you can afford it go to a naturpathic doctor and have then run your hormones. I just am tapped out right now or I would follow my own advice.

I don't manage anything well, as far as I'm concerned. My husband works a lot so I try not to be online when he's home. I'm usually on in the morning. If the weather is crappy then you'll find me online more. If I'm not feeling well, I'm here a lot too. Which is probably why I'm here so much. I've had a terrible summer. I just can't physically do the things I want to do, so I'm inside a lot. My house falls apart and then I litterally kill myself trying to fix it. I cleaned my basement 2 days ago, which is why I'm feeling so aweful now.

I don't really have answers for you, and I know you were hoping I did. I take MSM for pain and inflammation. It's natural and no side effects. That might help. But for the type of pain I'm having now, it doesn't even touch it and I'm taking percocet. YUK!

You might want to try www.hystersisters.com for more info on adeno. Like I said it's been more that 4 years for me, and maybe there has been some new developments! I'm always here to talk if you need me. Let me know!

Goony

At 5:43pm on August 6, 2008, Goony said…: Oh, Helen, I'm sorry you are dealing with all that!

I was diagnosed a little over 4 years ago. At that time I was all about believing the doctors and trusting them. I tried every pill they through at me with no success. I blead insanely bad. One day I started bleeding and it just never stopped. I blead for 11 months. If I had known about this whole raw food healing thing then, I would have tried it, but I wasn't aware of it, so I can't say one way or the other if it will help you or not. I've learned to stay away from certain things like drinking out of plastic. Staying away from fruits and veggies with pesticides and meat with hormones and antibiotics. There is actually a book out called the Endo Diet. I just heard about it, but I think it is similar to the csl diet. You need to stop eating meat and dairy. The hysterectomy helped me in the sense that I don't bleed to death now, and the cramping that came along with my periods from hell are over, but as far as helping with the Endo, no. Adenomyosis is in the muscle of your uterus, so it's a different ballgame, but Endo and Adeno usually go hand in hand. Unfortunately. But that doesn't mean you have it. Like your doc said there is only 1 way to know for sure. My endo got worse after each child birth, and so did the adeno. I was lucky to have had my 2 boys young. Endo can cause severe scar tissue and block your tubes making it difficult to conceive, but that doesn't mean you won't have babies. Nothing is written in stone. I would strongly recommend giving the csl diet a chance. I it helped you in the past, it could very well help you again. The daunting news is that it's gonna have to be a lifetime change, not just a few months, you know? As soon as you go back to eating SAD, your body goes crazy.

A D&C might be a good idea just to get it cleaned out, and then stick to the diet. Don't let anyone talk you into a hysterectomy. Your doctors shouldn't be pressing you and if they are then fire them and find another doc.

I regret not knowing what I know now, but at the time, I made decisions with the knowlege I had and so I just have to live with it. Of course I wish I still had my uterus and ovary. I hate that I'm missing parts. I worry about complications from it all. But it is what it is.

I'm actually not feeling very well right now, and really need to go lie down, but I want to talk to you some more about this, so I will be back, OK!

Goony

At 11:45pm on August 5, 2008, Goony said…: Hey helen! I had surgery in June for the endo. I lost my left ovary because of this stupid disease. Now it's after the right ovary. I'm fighting though. So no, it didn't help. Thanks for the love and support. Where have you been?

Goony

At 11:52am on July 29, 2008, Mia said…: Hello Helen!!

Thank You so much Helen. I have to keep reminding myself everyday how blessed I am. Also that I have so many reasons to fight as hard as I can. Go after what I want and just do IT! God is trully gOod
Thanx again

Stay blessed and well*

At 6:37pm on May 27, 2008, Debbie said…: Thanks Helen!
I will be celebrating my 49th year here on earth, hope to have at least 51 more!
love deb

At 1:27am on April 18, 2008, Chris in Wyoming said…: Thank you for your sweet comments after reading the post on Debbie's blog. She is so cool and has taught me so much. Thank you, too, for taking the time to write me a note. I am daily overwhelmed and lifted up by the folks on this forum. Very cool!
Chris in Wyoming

At 11:37am on April 17, 2008, Anastasia said…: Hi Helen,
Nice to meet you....I agree with your outlook as well. Keep your chin up about your Mom...don't let worry take too much hold. Keep your sense of humor about you along with your new eating habits......that's half of it too. There's a book by Julia Sweeney I think you would really relate too and it's funny too...(if you haven't already heard of it). I wish I could remember the exact title but if you put her name in a search on Amazon or B and N you should find it.
I can't relate as much to being SAHM to 4 but when my mother was ill ....my grandmother had just died suddenly leaving me and my aunt (who had a husband with a chronic disease) to handle my grandfather who was getting more severely stricken with dementia. On top of that, I had a sister struggling with anxiety-depressive disorder who would not leave the house or work. So, I know the feeling in away, you are having.
There is light at the end of the tunnel no matter what the outcome....and you'll get through it......and we are all here to help.
hugs,
Anastasia