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Caroline

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About Caroline

Caroline: Female

About Me:: My husband Keith got (finally!) diagnosed with Non Hodgkin's Lymphoma back in December...and after some emergency radiotherapy to get a tumour off his spinal cord where it was getting compressed, he opted out of chemo and into juicing, visualising, enema-ing etc etc...first Gerson-stylee, then metamorphosing into more Hippocrates Living food-stylee...and I'm being mrs nursey...

Where do you live? (city, state, country): Hastings

Relationship Status:: Married

Favorite Quote:: Don't look for relief, look for the truth!

What's your personal mission statement?: To unfold into my highest potential

Caroline's Groovy Groups

Crazy Sexy CoSurvivors: (64 members)
Created by Tae

Crazy Sexy Gerson Person: (52 members)
Created by Sheila Wisdahl

Alternative Treatments, what has worked for you: (91 members)
Created by Karen Kirchem

Crazy Sexy Carers: (3 members)
Created by Caroline

Raw Foodists: (195 members)
Created by Philip

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The Life Lounge

Retaining Fluid

Added a post Sep 12

Hi, just to say that I'm sorry you've been going through this too. I was just searching through the discussion lists for anything about water retention, as my husband has just started chemo and has... Read More »

Tagged: steroids, retention, prednisone, fluid, water

I'm missing physical intimacy...
8 Replies

Started this discussion. Last reply by Kimberly Godin Sep 10.

Hello. Since my husband has got ill with the NHL, we have only made love a few times. Initally it was lovely, but then after a bit I felt he should conserve his energy for healing, and then it got ... Read More »

stressed out caregiver, advice?

Added a reply Sep 3

Hello, I'm also a caregiver and I can totally relate to your distress....it's so hard and you're trying all the time to do the right thing, and often don't get any thanks for it from the people aro... Read More »

Tagged: giving, care

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Caroline's Friends

Caroline's Blog

all gone poopy

Just for the record...though I feel a bit too depressed by everything to write much...Keith was foiled at the last minute in his bid to overcome the lymphoma without chemo...He was booked in to start the IV Vit C treatment on Wednesday, when on Monday he suddenly (not so suddenly actually, he just wasn't letting on before) he lost sensation in his 'saddle' area (that's privates to you and me)...eventually agreed to let me drag him into hospital...and tomorrow morning he starts the old R-CHOP. I…

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Posted by Caroline on August 28th, 2008 at 6:12pm — 11 Comments (Add)

the waiting game...and trying to get a second opinion that we like ;-)

So...having made the big decision to go with the VitC IV's, and see how that went, we've now learned that our integrative doctor (200 pounds per hour) has sent a letter to the consultant at the hospital saying that he doesn't recommend this as a course of action and would advise my husband to go with the R CHOP. So...i've been thinking, perhaps the RCHOP is the best way to go after all, but Keith is terrified of it and his gut feeling at the moment is that it equates with death... plus he doesn'…

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Posted by Caroline on August 14th, 2008 at 1:30pm — 1 Comment (Add)

Vit C IV's here we come!

After worrying scan results on the 1st August, a whole 12 nail-biting days ago, Keith's decide to still eschew the chemo (R Chop) that's on offer and try a course of IV Vit C to get the NHL under control. I'm encouraged by the positive stories I've heard from others on here about it, and what I've read on the Hugh Riordan site. I'm obviously keen to see the lumps and bumps begin to disappear from his body, and hoping that this is going to do the trick. Nothing guaranteed, obviously. But at least…

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Posted by Caroline on August 13th, 2008 at 10:19am — 2 Comments (Add)

Comment Wall (22 comments)

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At 6:37am on September 24th, 2008, Caroline said…: HI, Nice to hear from you, sounds like you've been through a bit of a tough time lately...glad to hear about you not needing the op. Things pretty shitty here. Keith had to be admitted to hospital in the end as the cancer had advanced so much. He's had two rounds of chemo and its wreaking havoc but possibly might save his life. We're really arguing a lot - he just got home from hospital yesterday and it's awful. He also developed double incontinence as a result of refusing to seek treatment eearly enough so that's something else to deal with. I've just had enough. Best wishes, and hoping you're more positive than i am right now!! love, Caroline

At 5:55am on September 19th, 2008, Bhagvati Kaur said…: Hi Caroline

I'm so sorry I havent written back - I've seperated from my husband and been skirking about for a while! Hows your hubby? I really hope hes doing well?

I didnt need my 2nd op I'd been such a good girl with my diet but since fell off the wagon and now my mouth hurts! I need to get back on it, slowly getting there.

Thats amazing about your dream, I had a strong sense to send you that mesg though so must be something in it!
Blessings to u both
Bhagvati
xx

At 9:31am on September 12th, 2008, genie said…: Caroline -- one time I weighed myself before chemo and then again the next day, and guess what? I weighed TWENTY pounds more in only one day. Needless to say, this was all fluid, but a hell of a lot, wouldn't you say?

My onc said yes, kind of a lot (!!!) but it's normal to retain fluid from the steroids, and then chemo is a whole lot of fluids pumped in and the body isn't doing so well at pumping it out.

Between the chemo and the steroids, our poor old kidneys take a bit of a beating, hence the trouble in processing fluids. My bloodwork during chemo certainly showed a frightening trend in this direction (all better now). From my totally NOT expert point of view, it seems that current medical protocols don't do a great job of addressing this.

So this is where alternative medicine could be helpful. Personally, I would say that a real good acupuncturist who routinely deals with cancer patients could be a lifesaver in helping to get the water out, not to mention many other of the treatment side effects. In fact, believe it or not, many of the efficacies of acupuncture treatment for the side effects of cancer treatment have been well studied and documented in medical journals.

Best of luck to you and your husband, and many blessings.

At 10:32am on September 10th, 2008, Kimberly Godin said…: Power of positive thinking is no joke! Stay out of the cave and in the light! There is always someone waiting to drag you in...

At 5:18pm on September 5th, 2008, Becca in Austin said…: Hang in there, Caroline. Caretaking is the next most difficult trial, second only to being the patient. Just keep putting one foot in front of the other. That may sound trite but it's the only way to do it.
Blessings.

At 3:01pm on September 5th, 2008, Ruth said…: Caroline,
Thanks for the friend invite! I appreciate the chance to chat with other caregivers - we need to support each other! Nobody can completely get it unless they are also in that role. I am glad you have started te Carers group. There is another group called Crazy Sexy Co-Survivors here which is very similar.

The picture of you and your hubby is so sweet - there is so much love between you. How lucky you both are!

Talk more soon.

At 7:38pm on September 3rd, 2008, Whole_Body_Healer said…: Caroline, this may be of interest for you to follow-up on for Keith...I just came across it...http://biohermit.wordpress.com/2008/08/21/wheat-cancer-and-addiction-how-they-are-all-related/
xoxo Michalene

At 6:47pm on August 30th, 2008, Lanae said…: Hi Caroline -
I am a fellow NHL and wanted to send you a message of hope, love, and prayers. I will keep your husband and you in the thoughts and wish you smooth days ahead. You hang in there!

At 9:24am on August 14th, 2008, Karen Kirchem said…: Hi Caroline,

Thanks for the comment! I am glad you have found our community. You have asked about my protocol and you can find it w/ supporting documentation in the group "Alternative Treatments, what has worked for you". If you are on the main page, find the topic 'What has worked for you" and the doc's are about half way down. I hope this helps you.

Peace and Blessings,
Karen

At 4:55am on August 12th, 2008, Liz R said…: Caroline, No need! I just didn't want to stress the side effects over the fact that it saved my life. I would choose to take the chemo again if I had to do it over. I just disagree with the duration of the therapy and want my oncologist to explain or convince me why I need the two more treatments when my tests all look good. Whatever decision you make, continue with the healthy lifestyle; it will certainly make him stronger. Peace, Liz

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