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My Crazy Sexy Life

Brigita's Page

About Brigita

brigita
Female
Madtown, WI, United States
About Me:
Short version: Stage IIIb rectal cancer, dx Dec. 2007.

Long version: I am *not* my tumor.
Relationship Status:
Married
Favorite Quote:
When you're going through hell, KEEP GOING. --Winston Churchill
Your Website or Blog:
mycancerdeployment.blogspot.com
What's your personal mission statement?
Grind it out.

brigita's Groovy Groups

Rectal Cancer
(12 members)
Created by brigita
 

Onc Speak:

33yo, primiparous, non-smoking, hypothyroid (dx 12.07), 8+ year pescatarian 1st diagnosed with rectal cancer via colonoscopy on 11.30.07. Despite very low CEA levels (1.0), dx confirmed 12.04.07 via biopsy. Tumor determined to be stage IIIb (T3/N1), 6-7cm from anal verge on 12.11.07 via world's most unpleasant ultrasound.

  • Ovary transposition surgery performed 12.21.07 to preserve hormone function.
  • 33 treatments of radiation + Xeloda (3,000mg/d), finished 2.8.08
  • Laproscopic LAR successfully performed 3.28.08, which has left me with a temporary ileostomy
  • PATH REPORT: No signs of adenoma or carcinoma and ZERO of 11 nodes positive!
Looking forward to having a port put in, 8 4 8 rounds of FOLFOX chemo, takedown of the ostomy, bowel retraining, getting used to my "new normal," and ultimately being CANCER FREE!

UPDATE: Apparently I'm [peri]menopausal. Dammit.



Brigita's Friends

Comment Wall (9 comments)

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At 10:12am on June 16th, 2008, Vivian said…
Hey Brigita, thanks for putting a group together with regards to rectal cancer. My life partner Sid is fighting this disease right now. We are just thru 6 weeks of a light dose of chemo with 28 radiation treatments. Our next step is to see the surgeon. I feel good about the treatment we are getting so far because of the Survivor's Guide by Curtis Pesmen ( our treatment is similar). It is so helpful and reassuring to read and learn from everyone on this site. It seems that treatment is the same in Canada and the United States except one thing different is that Sid just had a picc line put in for his chemo as a lot of people get a port in the US. I guess I just want reassurance that things are being done right. Another thing we had to do was switch to a low residue diet. Which is totally not how we are use to eating. Lots of white foods. Do you mind sharing a bit of your diet with me?
Wishing you a good day!
Vivian
ps. I'm off to check out your blog!
At 9:53am on June 10th, 2008, Doreen said…
Hey Brigita - I saw your call out for a rectal cancer group, and said amen! I am an 8 year rectal cancer survivor, diagnosed in 2000, and currently in treatment. I have done the FOLFOX regiment, and you name it, I have done it! I have gathered a lot of info on this journey, and have a great network and support group of colon cancer survivors. Hang in there!
At 12:25pm on June 9th, 2008, Jane said…
Hi Brigita - thanks for your good wishes. To answer your questions, I haven't read your blog, but I will. Is the address on your CSL page? I will check after I finish this. And yes, I have a port. I've had it since January. I had continuous IV infusion 24 hrs a day, 5 days a week until they stopped it when I was hospitalized in what was to be my last week of chemo. I have used the port for IVs while in the hospital, much nicer than in the hand.

I am not sure when I will start chemo...I see my surgeon Wednesday. My oncologist emailed me (in reply to my question of when we will start) that he is going to talk to my surgeon about the lack of bowel movements etc, because he wants me to feel as well as I can before they start. I hope it doesn't delay too long. My last CT was clear, but that was before the takedown, and I don't want any of those micrometastases that are probably floating around to get a chance to land and start to grow.

I will definitely check out your blog re FOLFOX.

Thanks for keeping in touch, it helps.
At 5:08pm on May 24th, 2008, Jane said…
Hi, Brigita! Thanks for your comments both here and on my CarePage.

My docs are a little bit baffled at why I am still have rectal pain, but it could just be still from the surgery (they did after all cut most of my rectum out). I find I am ill in the mornings (my stomach bothers me) and tired a lot of the time. Could be that I am not moving or doing enough. I have definitely had a rough time with all of this, physically and emotionally. Little ashamed that the emotion has had such presence, and that I haven't been more positive. I guess I just keep waiting to be "done" with it, and keep getting more evidence that I won't ever really be "done." There are lifetime effects that will/may never go away. So I need to work on accepting that and living my life anyway. My boyfriend yesterday told me that I don't really have a life outside of this...and while he can't quite understand (no one could) how hard it is to be "up" when you don't feel well, he is right. I haven't been to work in months (luckily I have a great boss who is covering for me), and I don't really get out of the house much. Just feel too tired most of the time. Of course, I have also had surgeries every 6 - 8 weeks for the last few months, so I guess my body is kinda worn out. And here I head into another surgery in 3 days. Then 3 weeks later, start the FOLFOX. I am hoping I tolerate it well....I feel like crap so much of the time and I am not even on chemo! :)

So - my challenge is to start to live around and within all of that.

How are you doing?

Jane
At 5:41pm on April 16th, 2008, Anastasia said…
Ironic for sure. One of my favorite songs too. I hope you are hanging tough on the road to recovery and can get back to that degree at some point......we certainly need more voices of reason on the whole natural foods thing. My motto is basically to keep things in perspective and balanced. All these nature food supplements etc. out there are also trying to sell a product just like the pharmaceutical companies. Always question corporations and people with books and self-made products!
But anyway...eating more whole foods, trying to keep processed, packaged stuff (or have ANY fast food) to a bare minimum is definitely healthier for the body. I even agree with juicing as a medicinal supplement to healing or a nutritional supplement..just not as a replacement for eating a variety of foods and enjoying foods!
I worked in hospitals where traumatic injuries were abound and can happen/change life instantaneously.....so basically I feel finding the middle ground is a good way to go. I think the "Mediterrean" style of eating/living is a huge step alone in the right direction for so many of us in the US. Food that is tasty,less processed and can be enjoyed....life has no guarantees even if you kick cancer's ass.....so if food is a pleasure....I say enjoy it and don't over-analyze it or worry about it too much as long as you are making regular smart choices. So if its a piece of berry tart dessert with a little chocolate sauce drizzled over it that was made with unrefined/bleached flour and sugar....but not a technically "raw" food....I say go for it. It's too much to obsess that much when the risk of a car accident is just as great if not greater than getting a disease! I hope you have a piece of something you enjoy now and then ...even while going through all your treatments (if you even feel like eating anything at times).
Rooting for you ...you have a great outlook on life, like Kris,.....I am here for support if you need it and want to talk or bounce off to someone who can understand and just listen without having (luckily) any of my own battles to handle right now.
At 9:48am on April 15th, 2008, Jane said…
Hey Brigita -

thought I would check in, see how you are doing,tell you how I am, etc. As I think you know from my carepages, my pathology report was pretty much the opposite of yours, and they found all sorts of cancer still alive and kickin'. I've had to wrap my mind around that. Still doing so.

One of my sisters is in town from Alaska to help take care of me, to give Doug a break, my brother arrives for a visit from Wyoming today, and my other sister takes over on the 17th as caretaker. There is an overlap from the 17 - 19 when all 4 kids are here together, so that will be nice. My bro is just visiting, he is on Spring Break with his 3 children.

Anyway - I move a little better each day, just gotta keep walking and moving and resting.
At 9:19pm on April 2nd, 2008, Jane said…
I go in for my surgery this coming Monday. I am so glad yours appears to have gone well! Unfortunately, my surgeon has determined that laproscopy is not an option for me. My tumor is too big. Seems like mine is about the same place as yours was, though - 6 cm in. It is also 6 cm large, and they think I am probably III. I am hoping IIIB, as the numbers are better there.

I have had an ileostomy bag since Feb 29 - bad reaction to radiation swelled up my insides and nothing could get out. So i had to get one to save my life, basically. Is yours temporary? I am going to check out your carepage. I have one too, called JanesHealingJourney.
At 1:07pm on March 31st, 2008, Jane said…
Hi Brigita -

I just saw this message - how did your surgery go?
At 11:34am on March 1st, 2008, Rhonda said…
welcome cowgirl! You are so right about keep moving in the midst of hell. I say buckle down and put the pedal to the metal and get away fast! Great attitude. Keep it up. Welcome chica.
 
 

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