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Fantastic! Thank you for sharing the journey. Belly Bump to ya! Chris in Wyoming Read More »
Tagged: breast cancer, bone scan, tinainthepink, results
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Your Village is here...sending love and hugs and healing energy and prayers your way. Thanks for all you do and offer to us. You are amazing! Goony-thanks for keeping us up to date. I get behind an... Read More »
Added a post Aug 26
Wallow in the love! You provide so much for us... I so hope we get to meet one day. THANK YOU! Chris in Wyoming Read More »
Posted by Chris in Wyoming on July 1st, 2008 at 6:19pm —
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Nice to meet you: I have read your "Relay for Life Speech" and feel touched and inspired! Thanks for sharing it with all of us here.
How is your treatment coming along: how are you feeling?
Have a nice evening,
Mary
Please tell me more about yourself. If you have posted a (boreing) medical history, I want to read it. Last Thursday, I had my 55th Alimta treatment and 11th Avastin treatment. I'm naturally feeling a little tired and yucky. I managed to go to a party Sunday, and worked outdoors some today. I had to climb a ladder and get onto a roof. I'm self-employed.
I had almost no side effects from Alimta alone. That was a pretty good three years, considering. I was feeling OK when my chest CT showed larger tumor and lymph nodes and I added Avastin. It's been less fun after that, but I reduced the doses enough to stay OK.
So I went 7 weeks without any treatment and no bone pain or noticable problems. I expect to be pretty good with the first treatment (that I had last Thursday). It's when I string a few together that I can't handle it. My muscles and joints get messed up and I get more and more tired, till I fall asleep every afternoon and sleep late every morning.
My treatments are every 4 weeks and in about 3 weeks from today, I'll have another CT. If It's good again, I'm not going to push the treatments too hard. Enjoy life more, take more vacations.
Ask me any questions you like.
I have no good news to report. More pain, and bla bla bla, I'm sick of it. But thanks for the love and healing vibes!
Goony
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
--May 2003 begin periodic severe bone pains in neck, legs, hip, shoulder. (48 years old)
--November 2003 severe bone pain continuous, can't sleep. Develop pleural effusion, shortness of breath.
--January 2004 diagnosed non-small cell lung cancer (adenocarcinoma) by needle biopsy. 2.5 cm tumor / bone metastasis. Also HIV+ since 1985. Didn't smoke.
--Winter 2004 carboplatin/gemcitobine, reduce dose after two cycles due to blood toxicity. Also Zometa 4mg every 4 weeks, Celebrex--discontinued in 9 months
--Spring 2004 feeling much better, only mild bone pain, breathing better. No treatments through summer.
--Fall 2004, much worse, start Iressa (gefitinib) 250mg daily pills, no benefit, worsening condition, Vicodin every 4 hr day and night for bone pain.
--January 2005 Alimta every 3 weeks. Dramatic benefit on day 10 after first infusion (!). Bone pain gone, no pain pills. Mild side effects.
--January 2005 surgery for pleural effusion (pleuradesis), 4 days in hospital, 4 weeks recovery
--Spring 2005 dramatic recovery, return to work, active life. continue Alimta every 3 weeks, Zometa every 6 weeks.
--New Years 2006 month long vacation traveling in Asia, lots of exercise. In 2007 I have occasional bone pain but CT image stable.
--November 2007 after about 40 cycles of Alimta, CT shows clear progression of dissease. I'm feeling fine. Begin combo Alimta and Avastin (7.5 mg/kg Avastin at my request). next CT shows good response.
--January 2008 feeling tired after treatments. reduce to every 4 weeks, then reduce Alimta by 20%. Tolerating treatment better. Continue with work and active life mostly.
--July 2008 continue effective treatment, sometimes reduce treatment to every 5 weeks. No bone pain for last 7 months. July CT good. Treatments are wearing me down, muscles and joints sore, take needed break.
lots going on this summer, so busy with kids and all the rest.. pics on debbiedoesraw!
love deb
Overall I am feeling well - fight with mout sores and fatigue but that's about it.
I am currently visiting friends in Los Angeles and wold love to have some indepth communication with you when I get back home.
Thanks for the message.
Kathy
Thanks, good to hear from you, please get in touch if you are in the area, its good to get more info and meet someone going through the same thing!
Maybe Alitma can be "our miracle drug"
Susie
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